EndoForums :: Forum

Re: Painful Intercourse [by hconnell]

Mon, 12 Jul 2010 00:58:29 +1800

General Discussion:: Painful Intercourse
I also have painful intercourse. My husband and I can't even have intercourse because it hurts so bad! It feels like a knife is stabbing me inside. I wish there was something I could do to help the pain. Have any of you had a hysterectomy? Did it help?

Re: my story the begining [by NZmumof2]

Thu, 01 Jul 2010 06:21:50 +1800

Your Stories:: my story the begining
clomid worked twice for us :) well worth a try

I'm only 20 [by ravenbianc]

Mon, 03 May 2010 03:41:50 +1800

Your Stories:: I'm only 20
I'm not even 21 yet and already so many issues. In August of 2007 I had to have my right ovary taken out & a layeroff my cervix due to cancer cells. I have constant pain and problems with my other ovary daily. Now they have diagnoised me with endometriosis.
I am having a very hard time dealing with all of this. I feel like no one understand how I feel and the stress that has over come me. My soon to be husband tried to be helpful but he doesn't get it. Now they are talking about having to take the only ovary I have out due to the problems. It is breaking my heart knowing I might never have kids. I have cried every night and a lot during the day since my last doctors visit last Wed.
Any pointers on how to handle this? I am soo lost!

I'm only 20 [by ravenbianc]

Mon, 03 May 2010 03:41:47 +1800

Possible Endo Diagnosis [by pavlovscat]

Tue, 30 Mar 2010 16:47:40 +1800

General Discussion:: Possible Endo Diagnosis
I have been experiencing painful periods for many years. I started to have mid-cycle pain and severe diarhhea at the onset of my cycle about a year and half ago. I have had an exploratory lap done as well as several GI tests. I was told that I have IBS but the medications don't help. I also received a diagnosis of PID over the weekend by an ER doc. He found microscopic blood in my urine and free fluid in my pelvic cul-de-sac.

Is it possible the the Endo could have been missed if it located behind my uterus? My symptoms are in line with an endo diagnosis according to my primary physician. I have an appointment with a gyno this Thursday as well an ultrasound the same day.

Possible Endo Diagnosis [by pavlovscat]

Tue, 30 Mar 2010 16:40:22 +1800

What's Wrong With Me? [by pavlovscat]

Tue, 30 Mar 2010 16:35:02 +1800

Newbie Introductions:: What's Wrong With Me?
I'm new to this site and just wanted to post up some information about my current ordeal.

I have had painful periods since I was fifteen years old. I would get unbelievable cramping when my cycle would begin. I would also get terrible diarrhea that last for two or three days. It would be so bad that attending school was out of the question. I became pregnant at eighteen and delivered a beautiful and healthy baby boy at age nineteen (1995). He is my only child.

In 2007 I had the horrible pain again but this time it was mid-cycle. I went to the ER and was found to have a large cyst on my right ovary. It was a dermoid cyst and I ended up losing my ovary completely. Still no change in the pain.

In August of 2008 I began to have terrible lower abdominal pain and almost constant diarrhea. I had several Emergency Room visits for this pain. I also developed pain in my upper right quadrant. The doctors attributed this to Gall Bladder disease and ultimately removed it. This did not help the pain.

I then made an appointment with a gynecologist who told me it was caused by functional cysts on my remaining ovary. Unsatisfied with the diagnosis I saw another gynecologist who performed an exploratory laparoscopy. He told me that he found nothing.

I was then sent to a GI doctor via another ER visit. He performed a clonoscopy, Small Bowel Follow Thru and a Capsule endoscopy. I was told that I had Irritable Bowel Syndrome. I was perscribed several different medications for this and none of them helped the symptoms.

I was just recently in the ER again for pelvic pain that was so bad I could hardly stand up. After a pelvic exam, blood work, urinalysis and CT scan I was told that I had Plevic Inflammatory Disease and given antibiotics. They found microscopic amounts of blood in my urine and Free fluid in my pelvic cul-de-sac. How much fluid I don't know. I wasn't told. I am scheduled for an Ultrasound this Thursday and I have another gyno appointment that day as well.

I have been online looking up as much information as possible on Endometriosis. That's when I found this website. I'm looking for any information about the experiences that others with the disease have had.

Re: Endo in lungs- My journey so far (its long) [by chandrass]

Sat, 20 Feb 2010 18:07:30 +1800

General Discussion:: Endo in lungs- My journey so far (its long)
http://endometriosisinthelungs.blogsp ... dometriosis-in-lungs.html I also have endometriosis in the lungs and in Puerto Rico I am the only drink to have a global registry of cases with me because he does not know any specialist to do, only with no cure that can die and hormones such as LUPRON AND DEPO PROVERA AND DO NOT WORK DAZANOL remove the womb and ovaries is not a case where a woman from Jamaica 46 years with hysterectomy was also removed the ovaries of 6 months and then reappears later died endometriosis 2 We pulmonary embolism there is no cure for endometriosis so I pray God is what faith is and its history is much like mine wing having better luck that I have had so far. Chandrassa

Endoforums Site. [by admin]

Mon, 16 Nov 2009 04:15:58 +1800

General Discussion:: Endoforums Site.
Hello All,

Sorry its been so long since posting and that the site hasnt been updated too much over the past 6 months or so.

I have been quite busy with other projects, but am planning on getting stuck into some work on the site and promotion in the coming months.

I will be redesigning the whole site, same content, but much easier to use and more stylish. Also the site has been unable to send mail, and ill be moving to a new server soon also to rectify this and make the site faster. Hopefully I will be able to do this without interruption or down time, but apologise if there is any interruption.

Kind Regards and I look forward to improving endoforums for you all.

And also thank you for the supporters, who have been continuing to discuss your views and experiences on the forum.

Admin

Re: Lupron [by Kasper]

Fri, 06 Nov 2009 13:46:25 +1800

Treatments:: Lupron
My gyno is recommending Lupron for treatment of my severe endometiosis. Okay, so I had surgery this last January and lost an ovary and tube to an 8 1/2 cm endiometrioma on my left side, and now I have a 5 1/2 cm one on my right side. I keep reading horror stories of people who have been on both depo provera, and lupron. I am lucky enough to have a high pain tolerance, and over the counter pain killers usually work for the pain. However I do not want to have another surgery, can't afford the six week recovery time, but I would love to hear some good news about this drug. Any inpute would be great thanks.
K